Skip to main content

Autism Awareness Month 2023

 For this last week of April, I'm sharing some re-posts that I've written over the years about my son's autism.  I've realized that he and I have both grown and gone through so much over the years.  We're not the same people we were when we first received the diagnosis in 2005.  Our personalities, family structures and relationships and even our medications have changed a lot since then!



While many of my thoughts and perspectives have changed, a few things haven't.  So I want to speak directly to parents of all special needs kids, both child and adult, right now:

1) Reach out for help.  Ask for support.  Nobody expects you to do this alone.

2) This isn't your fault.  

3) It's okay to be sad and angry.  It's okay to grieve a loss.

4) It might not ever be what you expected, but it will be okay. You will find a new normal.

5) You, and your kid, are doing your best.

I don't have to know your kids' diagnosis or situation to know all of the above is true.  I don't have to know you to know that you're trying.  I don't have to know you to know that it's hard and you're tired.  But you know what?  There is somebody out there right now waiting to tell all this to you.  Someone who DOES know you.  Let them in.  Let them tell you. 

Once at the Farmer's Market, my son approached a lady and hugged her.  She was very sweet and welcomed his hug.  She then tried to chat with him.  She turned to me and said warmly while touching my arm "You're really blessed.  I hope you know that." 

On a bad day, when the stimming is rocking the house and the sleeplessness is damn near killing us both, I probably would have disagreed.  But on that day....that one perfect day at the Farmer's Market and on several others......I knew she was right.  This kid of mine is my privilege.  My joy, my comfort, my strength and my challenge.  My son.  The light and love of my life.  And I don't know life any other way. 

Comments

Popular posts from this blog

Reclaiming Your Childhood: Priceless

 This story might take a minute to tell. Bear with me. When my sister and I were little girls, my mother took us to a large baptist church in town. Even as a child, I never remember feeling welcome there.  But I do remember the lovely older couple that kept my Sunday School class. They gave us saltines and kool-aid, and I remember thinking they would be nice grandparents to have. At Christmastime, the Sunday School class was set to have a random gift exchange. Every child was supposed to bring a gift that could be exchanged with any other child.....no specific gift designations.  I received the gift of an Avon 7 bead necklace which was very popular at the time.  I loved it so much and was thrilled to have it!  I was somewhere between 5 and 7 at the time. (Back in the 1970's and 80's, Avon was a cosmetic company that was also known for it's inexpensive jewelry.  I couldn't find a price on what this necklace would have cost back then, but apparently there is ...

My Week with Rumor

 My dog Rumor was an experiment.  A trial offer.  And all parties knew that going in.  Except for maybe Rumor. Rumor was an outdoor country dog.  His given name was Ruger (named after a firearm if you don't know, I didn't) which made sense for a dog raised in hunting country.  He was a stray that came to live with a loving family at about the age of 1.  He lived outdoors, slept in a garage crate at night, frolicked with an older dog pack and had a lovely life. We think he was about 4 years old.  He had been neutered, had vet care and was by no means a "rescue". His dad offered Ruger to me on a give-it-a-try basis.  He knew I wanted a dog. He told me Ruger would be sweet to me and also be my protector.  He was right on both counts.  He told me if it didn't work out, I could bring Ruger back to him and his wife.  I could tell they were a little sad when they dropped him off.  It made me glad to see that Ruger came from such ...

NYE for $200, Alex

 Can we all just agree that New Year's Eve is the worst of the string of winter holidays?  I would even go so far as saying it's THE WORST of all the holidays.  I loved when Stanford Blatch defined a party as feeling very "forced festive".  To me, most NYE parties feel that way.  The idea that this is a big year-end blow-out and we'd all damn well better make it awesome! The reason I hate NYE is because it combines two of things I most hate about celebrations: cold weather and crowds.  Plus it's during a time of year when everyone has already spent all their money.  AND you usually have to the leave the house.  ADDITIONALLY, you have to stay up late.  It's a big F.U. from me on all this.   I would dare say that some of my happiest New Year's memories have been spent at home in my pajamas with either my child, an S.O. or happily alone.  I remember one unforgettable year of moving into a 3rd floor apartment on NYE.  I rememb...